Finding some answers

Page 13

 

The only exception was for brain injury, CT scans were run. (to this date 2012 Zack has now had 3 head injuries) Dr. X was able to do a routine office exam and was able to determine some kind of neurological problem, probably in the prefrontal cortex, which controls thinking and behavior inhibition. He has also had EEG’s that show quite a bit of disregulation on the brain waves.

     Children with bipolar disorder possess an overpowered limbic brain and an underpowered cortical brain that fails in its job to inhibit impulse action. (Strakowski,DeBello and Sax 1999). This {the prefrontal cortex}could have been damaged during birth or in utero. Since I did have a difficult  delivery,I believe it caused some damage,which is suspected by other doctors he has seen, if this in fact is the culprit of his problems. It certainly can be a contributing factor.While reading one particular research paper I found that 80% of children with behavioral problems also suffered traumatic births in which forceps and/or suction was used in the delivery. Doctors used both when delivering Zack.

He also made the following recommendations for  Zacks daily routine to help keep a level mood (1) strict sleep and wake cycle (2) diabetic diet (low sugar products and protein with every meal) (3) plenty of sunlight, sunlight has a calming effect on people (4) Omega3 supplement. I left his office that day feeling some sense of relief and hope that with this man helping us we would be OK. He encouraged me to call him if any questions came up or any kind of crisis concerning Zack.

     My dear child managed fairly well for a few weeks that summer, not 100% great but tolerable, then the hell began once again. Zack had two rages two nights in a row, each lasting about 3 hours long. The daily rages seemed to stop around the age of 3 1/2, and had been less frequent, about three rages a week.  I called the doctors office during the second rage and the psychiatrist on call ordered a medication to start Zack on, to hopefully help with his irritability and anger.

The medication was called Zyprexa (olonzapine) and literally over night he was a new child.  We were amazed, and relieved. There was a new child in the house, one we could enjoy on a daily basis, one that did not wake up screaming or throw things as he walked through the house. We were elated, and had more faith in our new doctor and his colleagues than ever.

From talking to his therapist and other professionals at the hospital when I worked I found out that Dr. X is an expert in pharmacology and mood disorders, especially in behavioral disorders in children. He was very knowledgeable, and up on all the newest medications and treatments. The most profound statement he has made to us so far came during an office visit, my husband asked “what do we tell our son when he asks us why do I act like I do, why do I have to take medicine?” to which Dr. X replied “You tell him he has a gift. One he can use to his benefit if he so chooses. He will have great energy and wonderful ideas and be able to do great things as long as he takes care of himself and takes his medicine as instructed.”

WOW !!

    My husband and I almost cried on the spot. I had been reading and learning of all the negative aspects of this illness, the devastation and hurt that it can cause. This was the first time someone had described it in a positive way. This doctor continues to impress me with his caring and personable treatment of his patients. He returns phone calls promptly, even once when he was in an airport out of town after calling and missing me earlier that day, just to check in to see if Zack was ok and if there was a crisis. He has even dropped off a prescription at our home.

I have read every book and article I can that has any relationship to bipolar disorder. I am amazed by the totally candid and honest life stories written by Patty Duke and Dr.Kay Redfield Jamison, two incredible, intelligent individuals who also suffer with bipolar disorder, and the most recent book, by Lizzie Simon, My BiPolar Road trip in 4D.

These people give me confidence and hope that this illness is not as debilitating and hopeless as I once thought. It is a manageable disease, just like diabetes. Complications do arise, and stress can have a devastating effect on stability. There can and probably will be setbacks, but always hope.  Every day scientists and doctors are making new discoveries and creating better medications for treatment.

This is a pic of one of the greatest days for Zack. Last year, in 2011, he was invited to LA/Hollywood to share his Good BOy ROy .Designs with celebs of the Nickelodeon Kids Choice Awards !! It was AWESOME. This is Mr. Jeff “Swampy” Marsh, creator of Phineas and Ferb. Zack loves that silly show. Mr. Marsh was so very kind and encouraging to Zack and his art. This was one very exciting trip. We got to meet about 80 celebs that day, and all got Good Boy Roy shirts.

 

Zack is quite a cut up, a real jokster. Enjoy this fun vid of him showing that side of himself.

 

 

 

 

 

Yep, he is quite a character :)

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